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Links, stories, images and articles about data-intensive research from Australia and beyond. An unofficial blog created by the Australian Research data Commons (Formerly: Australian National Data Service (ANDS), Nectar & RDS)) for the purpose of recording and sharing external content. ARDC does not endorse the content posted.
Monday, 25 August 2014
Thursday, 14 August 2014
Privacy in health care - brief ABC interview with A/Prof John Glover. Discusses use of health and spatial data to aid policy development and health service provision, and challenges faced by strict data (non)release policies for MBS data. Discusses privacy issues around health data.
http://www.abc.net.au/radionational/programs/healthreport/hr-john-glover/5235168
Tuesday, 12 August 2014
Inflammation Data Clash
Identical datasets yield opposite conclusions on the use of mice as models of human inflammation.
http://www.the-scientist.com//?articles.view/articleNo/40713/title/Inflammation-Data-Clash/
WIKIMEDIA, DOUG BECKERSIn 2013, a large group of collaborators published a paper in PNAS concluding that genomic responses to inflammatory stress in mice don’t correlate well with those in humans. “The prevailing assumption—that molecular results from current mouse models developed to mimic human diseases translate directly to human conditions—is challenged by our study,” Junhee Seok, who’s now at the Northwestern University Feinberg School of Medicine, and his colleagues wrote in their paper.
http://www.the-scientist.com//?articles.view/articleNo/40713/title/Inflammation-Data-Clash/
Fast forward to last week, and another study, using the very same data, reached the opposite conclusion.
“Here we re-evaluated the same gene expression datasets used in the previous study by focusing on genes whose expression levels were significantly changed in both humans and mice,” Keizo Takao and Tsoyosji Miyakawa wrote in their recent paper, also published in PNAS. “Contrary to the previous findings, the gene expression patterns in the mouse models showed extraordinarily significant correlations with those of the human conditions.”
So what gives?
According to a press release from Fujita Health University, where Miyakawa is based, the original study compared all the genomic changes, regardless of whether the involved genes only responded to the stress in one of the species. Such an approach “obscures the correlation between homologous genes of humans and mice to nearly zero, as demonstrated by Seok et al.” in the 2013 paper, the release read.
Gregory Hickok, a neuroscientist at the University of California, Irvine, tweeted: “Reflects that the conclusions aren’t automatically given by data. It’s all in the interpretation.”
A Librarian's Guide to OpenRefine
Academic
librarians working in technical roles may rarely see stacks of books,
but they doubtless see messy digital data on a daily basis. OpenRefine
is an extremely useful tool for dealing with this data without
sophisticated scripting skills and with a very low learning curve. Once
you learn a few tricks with it, you may never need to force a student
worker to copy and paste items onto Excel spreadsheets.
From the ACRL TechConnect Blog by Margaret Heller http:// acrl.ala.org/techconnect/?p= 3276
From the ACRL TechConnect Blog by Margaret Heller http://
Wednesday, 6 August 2014
A day in the life of a NY Taxi - great visualisation
Follow all the data from a NY taxi for a full 24 hours.
Careful - it is mesmerizing!
http://nyctaxi.herokuapp.com/
Careful - it is mesmerizing!
http://nyctaxi.herokuapp.com/
"Data Publishing while Preserving Data Privacy" - Harvard presentation
Data Publishing while Preserving Data Privacy - set of slides describing Harvard's repository, but also good workflows integrating data publication with citation and reuse.
http://datascience.iq.harvard.edu/files/datascience/files/iassist-crosas.pdf
Labels:
citation,
data publishing,
data sharing,
repository
Preparing (clinical) data for publication
A clear, instructive paper by BMJ editors on how to prepare health data (including sensitive data) for publication in a repository. Based on their review of confidentialising methods, ethical obligations, and expert experience. A great intro to the issues around publishing sensitive health data.
Paper for download here: http://www.bmj.com/content/340/bmj.c181
Paper for download here: http://www.bmj.com/content/340/bmj.c181
Labels:
confidentialising,
ethics,
legal,
privacy,
publication,
sensitive data
Privacy Tools for Sharing Research Data project at Harvard University
"Integrating Approaches to Privacy Across the Research Lifecycle: Long-Term Longitudinal Studies" - Privacy Tools for Sharing Research Data project at Harvard University held a workshop titled "Integrating Approaches to Privacy across the Research Data Lifecycle." Over forty leading experts in computer science, statistics, law, policy, and social science research convened to discuss the state of the art in data privacy research. The resulting conversations centered on the emerging tools and approaches from the participants’ various disciplines and how they should be integrated in the context of real-world use cases that involve the management of confidential research data.
Research report: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2469848##
Labels:
confidentialising,
consent,
data publishing,
data sharing,
privacy,
sensitive data
Tuesday, 5 August 2014
Willingness to Share Research Data Is Related to the Strength of the Evidence and the Quality of Reporting of Statistical Results
Great (Open Access) article on PLoS one
Willingness to Share Research Data Is Related to the Strength of the Evidence and the Quality of Reporting of Statistical Results
- Jelte M. Wicherts mail,
- Marjan Bakker,
- Dylan Molenaar
- Published: November 02, 2011
- DOI: 10.1371/journal.pone.0026828
Abstract
Background
The widespread reluctance to share published research data is often hypothesized to be due to the authors' fear that reanalysis may expose errors in their work or may produce conclusions that contradict their own. However, these hypotheses have not previously been studied systematically.
Methods and Findings
We related the reluctance to share research data for reanalysis to 1148 statistically significant results reported in 49 papers published in two major psychology journals. We found the reluctance to share data to be associated with weaker evidence (against the null hypothesis of no effect) and a higher prevalence of apparent errors in the reporting of statistical results. The unwillingness to share data was particularly clear when reporting errors had a bearing on statistical significance.
Conclusions
Our findings on the basis of psychological papers suggest that statistical results are particularly hard to verify when reanalysis is more likely to lead to contrasting conclusions. This highlights the importance of establishing mandatory data archiving policies.
US DOE releases Public Access Plan for publications and data
The U.S.
Department of Energy has released its Public
Access Plan in response to the OSTP Memorandum of February 22, 2013,
“Increasing Access to the Results of Federally Funded Scientific
Research.” The Plan outlines the Department’s approach to implementing
the objectives of the OSTP memorandum of making scholarly publications and
datasets resulting from research directly arising from DOE funding more readily
accessible to the public.
The Dept has also released it's “Statement on Digital Data Management”.
Opening Up Scholarly communications: Jisc & CNI conference - slides etc are available
Jisc and CNI conference 2014
Opening up scholarly communications
The 2014 Jisc/CNI conference brought together leading experts from the UK, US and Europe to explore the theme of opening up scholarly communications through the four key themes of:
- policy
- data
- access
- infrastructure
This event took place
Monday, 4 August 2014
OPEN DATA: Data Notes: Dissecting the most boring buzzword ever
This is a great post by Amye Kenall on BioMed Central and worth reading...
"By far one of the biggest concerns around Open Data is not whether we have the technology to enable researchers to make their data open but whether the cultural incentives are in place to make researchers freely share their data. Several publishers have recently started publishing ‘data journals’ or ‘data notes’. Is this latest publishing buzzword the answer to incentivising Open Data? ...
Check it out: http://blogs.biomedcentral. com/bmcblog/author/amyekenall/
Thanks Anna Shadbolt (Uni Melb) for sharing this on ands-partners
This is a great post by Amye Kenall on BioMed Central and worth reading...
"By far one of the biggest concerns around Open Data is not whether we have the technology to enable researchers to make their data open but whether the cultural incentives are in place to make researchers freely share their data. Several publishers have recently started publishing ‘data journals’ or ‘data notes’. Is this latest publishing buzzword the answer to incentivising Open Data? ...
Check it out: http://blogs.biomedcentral.
Thanks Anna Shadbolt (Uni Melb) for sharing this on ands-partners
Friday, 1 August 2014
The UK Medical Heritage Library: uniting digitised collections
The Wellcome Library and Jisc are delighted to announce our nine UK research library partners to the UK Medical Heritage Library project. These libraries will be making their historic collections available for digitisation alongside the Wellcome Library’s own 19th century works. They make up the bulk of the 15 million page goal made possible by funding from the Higher Education and Funding Council for England and Jisc.
The nine partners include:
6 university libraries:
UCL (University College London)
University of Leeds
University of Glasgow
London School of Hygiene & Tropical Medicine
King’s College London
University of Bristol
3 Royal College libraries:
Royal College of Physicians of London
Royal College of Physicians of Edinburgh
Royal College of Surgeons of England
Relevant works will be selected by the partner libraries from their historic book and pamphlet collections, representing a broad selection of works from across medicine, health, and related subjects. The Internet Archive will carry out all the digitisation work in a brand new scanning centre here at the Wellcome Library that will accommodate well over 2,000 items per month at peak times.
From October, these will start to become available online as part of the Medical Heritage Library collection on the Internet Archive website and via the Wellcome Library catalogue.
More details on the project and the library partners can be found here:
http://www.wellcome.ac.uk/ News/Media-office/Press- releases/2014/WTP056966.htm
The nine partners include:
6 university libraries:
UCL (University College London)
University of Leeds
University of Glasgow
London School of Hygiene & Tropical Medicine
King’s College London
University of Bristol
3 Royal College libraries:
Royal College of Physicians of London
Royal College of Physicians of Edinburgh
Royal College of Surgeons of England
Relevant works will be selected by the partner libraries from their historic book and pamphlet collections, representing a broad selection of works from across medicine, health, and related subjects. The Internet Archive will carry out all the digitisation work in a brand new scanning centre here at the Wellcome Library that will accommodate well over 2,000 items per month at peak times.
From October, these will start to become available online as part of the Medical Heritage Library collection on the Internet Archive website and via the Wellcome Library catalogue.
More details on the project and the library partners can be found here:
http://www.wellcome.ac.uk/
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