New report by OECD: "Business models for sustainable research data repositories"

http://www.oecd-ilibrary.org/science-and-technology/business-models-for-sustainable-research-data-repositories_302b12bb-en

How long does it take and what does it cost to prepare clinical trial data ready for sharing?

A new paper published today in Trials looks at how to prepare anonymised patient level data from a clinical trial to make available to other external researchers. By working through the process to anonymise data from two publicly funded clinical trials, we have estimated the time it takes to do this and how much this would cost.

Link: http://blogs.biomedcentral.com/on-medicine/2017/07/17/how-long-does-it-take-and-what-does-it-cost-to-prepare-clinical-trial-data-ready-for-sharing/

Full paper DOI 10.1186/s13063-017-2067-4

How do researchers pay for data publishing?

Results of a recent submitter survey by Dyrad:

https://blog.datadryad.org/2017/04/18/how-do-researchers-pay-for-data-publishing-results-of-a-recent-submitter-survey/

Key takeaways

Our preliminary results show that at a time of more and stronger open data policies, paying for data publication remains far from straightforward, with much of the burden passed along to individual researchers.

Concerns about funding for open data can have real impacts on research availability and publication choice. More than 15% of our participants indicated that they have collected data in the last few years that they have been unable to archive due to lack of funds. Meanwhile, over 40% say that when choosing which journal(s) to submit to, sponsorship of the Dryad DPC does, or at least may, influence their decision.

The good news it that during our 8-month pilot implementation period, the US National Science foundation sponsored nearly 200 Data Publishing Charges for which researchers would otherwise have been responsible.

We at Dryad are committed to finding and implementing solutions, and very much appreciate the feedback and support we receive from the research and publishing community. Stay tuned for more lessons learned.

Compelling Stories for Opening up Data

In a series of value-stories, the Open Data Handbook (http://opendatahandbook.org) provides compelling stories around the world why making data more open can generate huge benefits both socially and economically.  Here's some samples.

http://opendatahandbook.org/value-stories/en/

Open data reduces mortality rate in UK hospitals
Written by Katelyn Rogers
http://opendatahandbook.org/value-stories/en/uk-mortality/

Hong Kong/China - open sourcing genomes / crowdsourcing killer outbreaks
Written by S.C. Edmunds
http://opendatahandbook.org/value-stories/en/open-sourcing-genomes/

Open data businesses - an oxymoron or a new model?
Written by Mor Rubinstein & Christian Villum
http://opendatahandbook.org/value-stories/en/business-and-open-data/

Exposing $62m in potential pharmaceutical savings in Southern Africa
Written by The Open Data Institute
http://opendatahandbook.org/value-stories/en/pharmaceutical-savings-in-southern-africa/

European Commission's View on Increasing Access to Research Information

In this Communication to the European Parliament, the European Commission highlights the importance of increasing public access to research information:

"It is estimated that government investments of $3.8 billion in the Human Genome Project, a U.S. co-ordinated research endeavour including major European contributions, have had an economic impact worth $796 billion, created 310 000 jobs and launched the genome revolution."

https://ec.europa.eu/research/science-society/document_library/pdf_06/era-communication-towards-better-access-to-scientific-information_en.pdf

The U.K. Jisc-ARMA ORCID Pilot Project

The U.K. has recently concluded their ORCID Pilot Project.  The final report, ORCID Institutional Implementation Cost Benefit Analysis Report is now available online.   A checklist summary of lessons learned is also available.  A national consortium for ORCID is also underway in the U.K.

http://repository.jisc.ac.uk/6025/2/Jisc-ARMA-ORCID_final_report.pdf

http://repository.jisc.ac.uk/6025/3/Jisc-ARMA-ORCID-checklist-for-HEIs.pdf 

https://www.jisc.ac.uk/news/national-consortium-for-orcid-set-to-improve-uk-research-visibility-and-collaboration-23-jun

Value and cost benefit of open data policy in USA
Some recent US views:

http://www.businessadministrationinformation.com/news/commerce-department-releases-report-on-benefits-of-government-data

 

http://www.esa.doc.gov/news/2014/07/14/new-commerce-report-explores-value-government-data

 

http://www.whitehouse.gov/blog/2014/07/15/opening-data-spur-innovation-economic-growth-0

 

http://www.commerce.gov/blog/2014/07/14/new-commerce-department-report-explores-huge-benefits-low-cost-government-data