'Health data' from an app used for evidence in a murder trial

http://www.bbc.com/news/technology-42663297

CoreTrustSeal Certification Launched

CoreTrustSeal Certification Launched

Tokyo, Japan and The Hague, Netherlands – 11 September 2017

The ICSU World Data System (ICSU-WDS) and the Data Seal of Approval (DSA) are pleased to announce the launch of a new certification organization: CoreTrustSeal.

The CoreTrustSeal Board offers all interested data repositories a core-level certification based on the DSA–WDS Core Trustworthy Data Repositories Requirements catalogue and procedures. CoreTrustSeal Data Repository certification replaces the DSA certification and the WDS certification of Regular Members.

The CoreTrustSeal is a community-based nonprofit organization promoting sustainable and trustworthy data infrastructures. It is governed by a Standards and Certification Board consisting of members drawn from the Assembly of Reviewers (by election) and the wider repositories stakeholders (appointed).

‘We are driven by our commitments to offer professional certification tools and services to data repositories and to support our voluntary qualified reviewers to conduct audits under optimal conditions’ said Mustapha Mokrane, Chair of the ad hoc CoreTrustSeal Standards and Certification Board. CoreTrustSeal is developing a sustainable business model and as an initial step, will start charging a modest fee to cover administrative costs as of January 2018.

The CoreTrustSeal certification is envisioned as the initial level in a global framework for repository certification that also includes the extended and formal levels. Ultimately, the CoreTrustSeal will endeavour to provide core-level certification for other research entities such as data services and software.

For more information check out the CoreTrustSeal website.

Following on from the MBS/PBS dataset re-identification in 2016

The academics who re-identified the dataset have written an article about it https://pursuit.unimelb.edu.au/articles/the-simple-process-of-re-identifying-patients-in-public-health-records

... and the Australian Privacy Foundation have commented https://privacy.org.au/2018/01/07/media-release-open-data-too-much-sharing-too-little-care-whos-reading-your-health-information-now/

... and some comment from SMH http://www.smh.com.au/technology/innovation/australians-health-records-unwittingly-exposed-20171218-p4yxt2.html

New report by OECD: "Business models for sustainable research data repositories"

http://www.oecd-ilibrary.org/science-and-technology/business-models-for-sustainable-research-data-repositories_302b12bb-en