One of NHMRC’s primary roles is to fund high quality health and medical research and ensure that the Australian community receives the health and economic benefits from that investment. An important part of this responsibility includes enabling researchers and members of the community to access the outputs of research.
NHMRC acknowledges the importance of making data publicly accessible.
NHMRC encourages data sharing and providing access to data and other research outputs (metadata, analysis code, study protocols, study materials and other collected data) arising from NHMRC supported research.
This aligns with researchers’ responsibilities under the Australian Code for the Responsible Conduct of Research (2007), which provides advice on the storage, management and privacy of research data (section 2.5-2.7) and states: “Research data should be made available for use by the other researchers unless this is prevented by ethical, privacy or confidentiality matters.”
Below is a general guide for researchers to consider data and metadata management when planning and conducting research. This document will be updated periodically to reflect new input and information.
Comment by Karen Visser: This is an excellent representation of how to plan for data fits within funding obligations Figure 1 – Data during the research life-cycle. In the lifecycle diagram above, stages essential for all health and medical research are represented in blue, whilst additional research type specific processes are indicated in green.
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