The findings of the study suggested four key factors as being important considerations in judging whether any particular data sharing initiative is likely to be viewed as an example of good data sharing practice, and thus likely to command support in the development of models of data sharing practice.
These are:
- assessing the value and benefits of data sharing
- minimising risks of harm and safeguarding the privacy and confidentiality of research participants,
- promoting fairness and reciprocity,
- instilling trust and trustworthiness among participants, communities, researchers and the wider public .
Welcome to the Resource Centre for ethics and sharing individual-level research data. This Centre brings together resources about ethical best practices for data sharing, policies and processes for data curation and data sharing, and links to repositories for data sharing. Please participate in this online community by posting links to your resources, and questions and comments in the discussion group or a blog.
About Global Health Bioethics, Research Ethics and Review
This website was launched in May 2015 and brings together the Global Health Network websites on research ethics and bioethics into a single resource. This is a free open-access collaborative web resource for anyone interested in the ethical issues arising in collaborative global health research.
Our aim is to provide resources to enable people conducting global health bioethics research, or reviewing health research, in both developing and developed countries to communicate about issues in global health research ethics, share models of good research practice, collaborate on developing research ideas or applying for research grants, and have ready access to a wide range of resources on research ethics.
The resources on research ethics on this site are funded by the Bill and Melinda Gates Foundation. The resources on bioethics are funded by a Wellcome Trust Strategic Award (096527).
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